We are so excited to say that we are going to Ohio! (Don't take it personally, Ohio, but I never thought I'd say that!) After the scope in January, it was again confirmed that Andy has eosinophilic esophagitis. He is on the Flovent inhaler again, and life is good---he eats like a champ, sleeps like a rock and has a TON of energy. It is wonderful to see and sad to think about how different he is when he is feeling badly. We got all of our paperwork submitted and he was approved for the EE center there. We were hoping for a trip during spring break, but they were full. Even better, they have an opening sooner!! We can hardly wait!!!
So, why Cincinatti, you may wonder? There are 3 main centers for research for EE in the US: Denver, Philadelphia and Cincinatti. I spoke with each of the centers and felt that Cincinatti would be a good fit. Brian's parents are able to join us and will help with Kate while we are at the hospital with Andy, so we are truly thankful for that!
We will be there for a full week. They will do several tests including another scope, a bone scan (to get a baseline for the impact of the Flovent-steroid- he takes for this) and REAL patch allergy testing. We hope to finish the week with ANSWERS!!!
Thank you for all your thoughts and prayers--keep them coming and I will update soon after our trip! Cincinatti, here we come!!!
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This details our life as we have discovered our son's corn allergy and his diagnosis of eosinophilic esophagitis. Living with a corn allergy can be a challenge, but our guy is thriving and doing great!
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