I cannot believe I haven't updated this for so long! I guess with Facebook, I figure no one looks here. But now that I am a SAHM, one of my goals is to support EE more, so I will work on this...
Since the last post...
We have made 2 more trips back to Ohio. Last summer (2010) we spent a night at the hospital to rule out reflux for good. After they scoped him that afternoon, they inserted an NG tube (in his nose) to monitor the level of acid he was having at meals, etc. We never believed that he had this, so were not surprised to find nothing out from this test. His scope that day was negative for eosinophils, which was great because we had cut out milk, soy and corn at that point and it was working.
We went back again this summer for another scope. 3 months before the appointment, we reintroduced soy so that we could rule that out. It was a very quick trip with dad and grandpa because I was 35 weeks pregnant at that point! The scope was CLEAN again, so we ruled out soy.
Where are we now?
Well, we are continuing the milk and corn-free diets. IF we want, we can reintroduce one of them and then 3 months later go back for another scope OR we can wait a few years to go back for a check-up and keep on keeping on. At this point, Andy has started kindergarten, so we are going to wait until closer to summer to make a decision. We are confident it is both of these foods, so we continue on.
My hope is that we could find a level of milk or corn that is tolerable for Andy. Milk is a HARD allergy to avoid. I have found ways to work around most foods, but CHEESE is impossible to find. He wants pizza so badly, but I cannot find cheese that is like cheese (taste, texture, etc.). But we did find some awesome ice cream treats that he LOVES!
One of my goals is to list foods (brands) that he can have because that was the most challenging part of all this. Now that we know, we are good to go (most days!).
Check back soon!!